Losing Family

I have this fear and hatred of losing family.

I lost my first husband to his unfounded suspicions. Some serious drinking and risky behaviour got me through the divorce

I lost my second husband to reasons unknown, that I still continue to guess at. I had years to become fond of his family and it still hurts. I will never know how they are no matter how I worry, and I will always be aware that they do not care how I am. Some divorces just rip the guts out of you and they never grow back.

The children’s father’s family I lost out of necessity. If they know where I am, so does he. This was about preservation.

I lost my best friend to a heart attack. I suppose multiple heart attacks, really, and the last one was just that.

Now I have lost my father for that same reason and my children have lost a grandfather who taught them how to fish, took them on their first ATV ride, and reassured them that bears were not threatening to people in the overwhelming majority of encounters.

I lost my father once when I was child, age thirteen. He did not speak to me for about four years. He sent me letters explaining how to gain his favor back, but the letter (for it was photocopied and sent a few times) did not make sense to me. I wanted a love that was not conditional. I did not understand how things worked, what people wanted from me. I was deficient in my understanding and lacking in my behaviour and I just wanted to be known and loved. Nothing else made sense to me. When I reached adulthood I contacted him to re-establish a relationship and I decided I would never give him any cause to leave me again. He offered me a room (conditionally) when I was homeless and I turned it down. I wouldn’t have been able to bear losing him again because I failed to meet his conditions. Worse, I couldn’t bear his disapproval.

I have had some of his disapproval in the years since but I have never offended him enough that he chose not to contact me.

The children had some of his disapproval, but he still showed up with hugs for their birthdays and took fish off their hooks. They have not many male role models, so he was very important to them. The oldest and youngest adored him and my suspicious middle child was coming around to a mutual respect- as they are both avid outdoorsmen.

The youngest is five. Too young to lose a grandpa. None of them have sat down and cried about it-though there was some tearing up. The oldest, at nine, is trying to make me stop talking about their grandfather. He doesn’t want to remember that his grandfather has passed away. I had a talk with him about it, and explained we cannot pretend someone is still with us, it is disrespectful, nor can we simply stop mentioning the deceased for the same reason. He understood. He just doesn’t want the hurt. I don’t want it, either.

I have his Christmas present on a shelf. I know the brand of pickled fish I was going to pick up for him the next time I was in town, a brand I don’t think he had ever had.

He asked me a few times if something ever happened to him, what would I want of his? I wanted his cowboy boots. He didn’t have them anymore. I wanted his boot polisher. He didn’t have that anymore. I wanted one of his puzzles. He was going to look for them. He used to do puzzles and eat popcorn and watch baseball or football. Huge puzzles. Boring picture puzzles of covered bridges and fall leaves, the kind that you put together more by chance and determination than by color. The kind you take a month to finish. I want to take months to finish it, knowing he did so before me, with patience.

That’s all I want. Whatever my stepmother meant about having money that her own father left her that she sunk into the house or about how they both worked for what they have I hope she didn’t have a point or any suspicions of me.

Because that would mean she wouldn’t know me at all, after 35 years. I was worried about her. I wanted to meet with her so I could see her face and reassure myself that she was okay. I left the children at home with a sitter in case the stress was too much for me or for her. I needed to see her, my father’s beloved other half. Because I love her. I love how much she did for my father and I love how happy she made him. I truly believe she tamed him and made his life worthwhile. No one else could shush him when he was getting offensive. She was everything to him, no matter how demented he had behaved towards her this past year. I remember what a comfort she had been to him during the years I tortured my parents with my own mental illness, if my preteen confusion was that. His divorce with my mother enabled him to establish a relationship with a woman who completed him in a way no one else could have managed. Early enough in my life that I could become attached to her, too. I was five when I met her- she was like the mother I often wished I had, who had always patience and cookies.

So I am terrified that my children will lose their grandmother. Terrified.

 

 

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A Few Days Later…

Our neighbors have forgiven us. We stayed inside since that night and we stayed out of sight so we could give our neighbor a break and some time to heal.

It was a good choice.

Her mother sat her down today and explained to her how little boys are and what her own brother did to her growing up and she came over and told me I should let the kids out to play.

I am so relieved. I can afford to move, but I can’t afford higher rent.

More importantly, I can’t afford the guilt I would feel if this girl was traumatized.

 

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My Life Does Not Seem Real

My Oldest Son has had three tests now. The 1 hour EEG showed abnormalities. The MRI was normal. I don’t have the results of the 24 hour EEG. I hate waiting for the doctor to meet with me. Why can’t people just type stuff up and shoot off an email?

The Baby has become unpleasant. She is five and somehow her cute strong will has become her rude abusive personality in recent months. We are working on it.

My Middle Child last week was playing with two kids when one pushed him to the ground and he lashed out with a foot and kicked the other (a girl) in the face from defensive posture. He kicked a girl who suffered from a concussion most of last year. He is under instruction not to hit anyone, and not to ever mess with her head because of the risk of injury! He and another witness say he was kicked before he did that, and the victim and another witness say he was not. The girl he kicked immediately gave him a hard kick in the balls. She is a teenager, he has just started second grade, so it was a decent kick that covered the entire area, not a little toddler kick like his sister has. He iced himself up and was okay after a while. Either way, he was forbidden to play with either child and he was grounded from his favorite things. So instead of playing with this girl he helped his friend play with her yesterday by filling up a water gun for him, as a sort of refill assistant. I saw him coming out of the house with the full gun but he seemed to be staying out of the fun as he was instructed, so I thought nothing of it.

Until the girl came running up drenched in water and told me it was toilet water. Some had gotten in her mouth and she had swallowed it. I told her I couldn’t imagine he would do that, he had to be lying and she was reassured. I got him home and he explained to me that he put some toilet water in the gun and I marched him back over and made him confess. The victim wants nothing to do with our family anymore. She asked me to keep my kids away from her and specifically my Middle Child- she never wants to see his face again.

I lost a babysitter, a friend of ours who went everywhere with us for two years, from the zoo to the pumpkin farm to wildlife rescue trips. She spent hours puking after the incident and worse, she feels victimized by my son. He punched her once in the spring, kicked her last week, and this. He is a lot better than he used to be, but none of this acceptable. He has been complaining about her for months, he says she targets him and pushes him down, kicks him, won’t let him play when all the kids are playing together. It bewildered me, I had seen none of it. I thought it was his skewed perception, his PTSD. I have tried to get him to talk to her about it, he would not. I have seen her be aggressive but not like what he describes.

So I don’t know if this is revenge or thoughtlessness. He seemed to think it would be funny. He did not seem to understand how offensive it was until he saw how angry I was. He has restrictions lasting a very long time, and we are respecting her wishes. Today is the next day, and we did not play outside. We did not park in our parking lot, we walked in from the street from the side so we would not have to cross her front door.

I don’t know what to do. I have to keep a seven year old away from his next door neighbor, when both are outside all the time normally. This is my hyper kid, who needs to run and be active all day. I can’t even trust him with a water gun. I have to cook and I have to clean and I can’t just let him play anymore but for a half hour an evening. I don’t know what to do. I liked it here, but I don’t want to distress this girl any longer. She is the victim, and I can’t keep her safe from my kid even when I am present. I think I have to move somewhere else. I cannot think of any other right thing to do.

My life has become a nightmare again. I am right back where I was a few years ago, when my kid was a danger to other people. I have to treat him like that and hope he can rise above it. It’s a horrible catch 22. I have to treat a kid like he is dangerous and then hope he doesn’t see himself as dangerous so that he can learn normal behaviour instead of living up to expectations of being dangerous.

I can’t stop crying. The only saving grace was that I had cleaned the toilet before we came outside. It’s a serious miracle that there was a bit of cleaner in the water instead of what it could have been. Still crying, though. Since yesterday.

 

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Filed under Bully, Bullying, Child Abuse, Child Psychology, Domestic Abuse, Domestic Violence, ODD, PTSD, SIngle Parenting, Trauma, Uncategorized

Best PTSD Resource

http://www.new-synapse.com

I cannot believe how accurate this site is on how having and healing from PTSD feels. For those of us who are trying to heal ourselves or others, please just take a look. Some very good ideas are in here, the focus is on being in charge of your own recovery- tons of things you can do without being in session, though having a therapist is of course recommended. I very rarely plug anything, so you know it´s good.

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More Neurological Testing

So we did the EEG yesterday. It was hard for Oldest Son to sit still, as expected. The technician told me we would not be back, this test would be a one shot deal, and I assumed (don´t we all assume techs know the results of the tests as they observe them?) that the tech was saying she had observed nothing alarming.

So today I get a call saying that the doctor does not think my son´s neurology is responsible for his regressions but his EEG showed abnormal activity and we did not capture any seizure, so they want a 24 hour test and also an MRI with sedation.

I have never been away from my children for a night. I am going to have to be.

I arranged the sitter (eternal thanks to him) and I informed my boss and now I just have to coordinate another physical before the sedation.

The 24 hour test will be three weeks from now, the MRI in two, and I will have the results literally minutes after the 24 hour test is complete, before I even leave the site. I have never been so grateful to be out of California. I would never get appointments so readily there.

 

 

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Filed under ADHD, ASD, Asperger's, Medication, SIngle Parenting, Uncategorized

Regression Resolved

The regression in my Oldest Son is just about resolved. He is again able to take a bath mostly reliably and now he does remember to shut doors, even if a beat later. He still does not tie his shoes, but he was not doing that daily before. I have used a thin sewing elastic to permanently tie his shoes so that he can participate in gym with less chance of injury. Summer has again had a good effect on him, healing most of the damage.

Since the neurologist thinks his EEG this week will come out fine, then this has to be a psychological issue. Probably the stress of being neurodivergent in a neurotypical world (school).

I don´t know how to lessen his stress without lessening his chances of a more independent life. I can´t expect less of him, he needs to learn how to care for himself, so his home life cannot be the relaxing worry-free time I would want it to be. This morning I had to teach him how to take care of his armpits and so I taught him how to wash his own face for good measure, because if his chemistry is changing enough to give him body odor then he has to start taking conscious care of his skin. He is eight. I was hoping this would come two years from now- but when his upper lip got fuzzy a few months ago I knew it was going to be earlier than I wanted.

Luckily there are a few very big early puberty boys in his social group run by the psychologist, so I will be able to get advice from their parents when we attend.

Maybe when the service dog comes it will get easier. For him, if not for me. Please, for him.

He is no longer going to be viewed as a cute harmless little autistic boy in a few years. People are going to look at him with fear or unrealistic expectations due to his size and behaviours and I wish I could just make it all better. But you cannot hang a sign on your child and you cannot change the attitude of the general public. You have to just cling to hope that his immediate circle of acquaintances will yield some kind souls and a friend or two and pray he never has any trouble.

 

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Neurology is Pending- Should Be Okay

We have an appointment for an EEG in a few weeks- just to rule it out. The preliminary exam was aced by Oldest Son. Most likely his yearly regressions are not neurological.

That means they could be psychological. I have to be patient and wait for the test, for the results, for the conversation with the psychologist. I am jumping the gun, in my head.

Already I am sorry for him. Infinitely sorry. If this is psychological, then my son is experiencing a breakdown on a yearly basis- probably from trying to maintain as an autistic child in a neurotypical world.

Children should not experience such stress. Leaving our past and forging our fun, safe, and healthy future was supposed to heal him, ease his life to such a point that he could enjoy it.

How can you teach a child to cope with such difficulties? I have to teach him to be resilient and I don´t want to. I just want to make the way smooth for him. I have to demand he do this and do that when I know damn well his brain doesn´t remember the sequence, probably cannot remember the sequence. I have to push him and pull him and keep on him and I hate it. He wants to relax after school. He wants to relax all the time, really, just like any of us. He deserves a break and I can´t give it to him without feeling like I am hampering his progress.

His neurology is different-even without seizures. No one is going to accommodate him. Nothing I do can change those two facts.

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